Dylan's Story

Dylan's Story

#99STRONG

In September of 2018, our beautiful son Dylan Adams, then 11 years old, was diagnosed with Desmoplastic Small Round Cell Tumor (DSRCT). DSRCT is a rare, aggressive form of pediatric cancer. Our world was turned upside down in the blink of an eye. Dylan fought hard for two long years. Sixteen rounds of chemo, a seventeen hour surgery to remove 809 tumors in his abdomen, twenty-five radiation treatments, countless hospital stays, port accesses, needle pricks, scans, tests, and several infections. Time missed with friends, no school, and isolation when in active treatment.


All of this was hard on him, as well as our family. On October 18th, 2020, two years and one month after his diagnosis, Dylan won his battle and gained his wings.


On the long ride home from MUSC Children's hospital that early morning, Mike and I started talking about things we could do to keep Dylan's memory alive. Little did we know the legacy our thirteen year old son would leave. We knew he was special from early on, but we could not have imagined the lives of people, both young and old, that Dylan touched.


I feel like God placed on both of our hearts to start an endowment in Dylan's name to help families with children fighting pediatric cancer and to help fund research at MUSC Children's Hospital. We were blessed in that we had an entire community behind us, helping us, fundraising for us, supporting us. That's not always the case. I have watched families struggle because they couldn't afford the cafeteria for meals, when they've been in the hospital for weeks on end. I've seen young children have to have a volunteer in the room with them while they're receiving chemo because their single parent had to work. I've seen and hurt for families, wishing I could help them. Now, through this endowment, we will be able to help.


We hope that you will consider donating to our goal to help these families and to help fund new research for pediatric cancer.


- Mike and Jennifer Adams

Share by: